Chronic Severe Pain

1calmstorm: The worst part about having an incurable painful condition is accepting myself as a less productive person and feeling so ashamed of my inadequacies----- Also, I cannot prove to others how much I hurt and how distracting it is-----People expect me to do things as if I'm not sick, to do things that are truly impossible for me. When I can't do it, they judge me------anyone else experience this???

kimmy40: hun,completely understand,that thing i cant see it,it mustnt be there aye!!you do your best huni,no one not even yourself can ask much more than that friend never mind the neigh sayers mate,be your own conigeious,your not here to save the world ,but enjoy

1calmstorm: Awwwww, thanks kimmy

kimmy40: always welcome hun

Ramon: the life cycle of nature shows us that when something dies it gives life to what follows. Your weakness and pain can give way to other beautiful things in you, Look up c.e.m.f. counter electro motive force.

1calmstorm: Thank you, I sure will.

oldtimeracer: I feel the same way, hon. I try my best to just roll with the punches and go along like nothing is wrong. I hate it when people ask me "Are you OK" or What is wrong"? I hate lying to them by saying nothing or I'm fine but I hate having to relate to them what is really going on with me physically.

1calmstorm: oldtimeracer: you really know...what do you do or say when someone asks you to do something that's too much for you?

mad111672: I have FM. (Hurt all the time). I totally get you. For years, my mom was thought to be lazy and depressed. Not so! What really gets me, are the people you complain, but have no idea what cronic means.

1calmstorm: mad: my mom had it too...she was a preacher's wife and couldn't perform the duties the church expected of her - she often had to stay at home from pain and fatigue, they thought she should just "get over" the depression (many of those people got depression later); she couldn't be a sunday school teacher or lead music or sing in the choir; My dad was later fired because of the people who didn't understand.

mad111672: Wow! That kind of goes against church values doesn't it? Well, I know that it didn't used to be medically recognized. It really isn't now, except for a process of elimination. The didn't tell me what I had, they told me I must have it because of what I didn't have. Make sense?

1calmstorm: I hate it when doctors just make something up or say that it's your fault when they don't know the answer. If they don't know they should say so adn send you to someone who might, or even consult with someone on-line. There are some doctors who DO have answers, it's just that most doctors don't want to take the time to look, because time is money....unfortunately we have to do all the research on our own and take it to the doctor and hope he/she will listen.

mad111672: That is exactly what happened! I took what my mom had issues with all the years previous, and researched my issues, and came to the conclusion that my problem could be fibroid myalsia. I went to the doctor and told him what I had! He did some tests and said well it isn't this, this, or this. So, you must be right. CRAZY!

ninababy11: I know exactly how you feel, nobody can understand what you are going through, regardless of how much they try to understand. I have been going through various severe chronic pain problems and diseases for 6 years now and it is beyond brutal. I'm here if you want to talk!

nurse_kaz: i have a chronic back problem too, noone can tell me where this pain is or where its coming from. i got hit in the back by a patient 5 yrs ago, the pain tends to come and go, excruiating at times. nothing seems to help, its a pain. i cant work full time anymore, and countless number of times having to go to the chiropractor. i think ppl dont understand how subjective pain is, they dont believe you annoys me... or that it was ur fault that it hs happened.. i have been told "you're too young to have a chronic back injury", well i cant change that. i just have to live with it.

society is crap sometimes, ppl dont get it till they have gone thru it. but i would just say try not to take it to heart. if they dont understand or dont know they shouldnt b criticising others who are going thru the pain.

GirlKillsZombie: Yay a chronic pain thread! I've got peripheral neuropathy from chemo a number of years ago, and it's horrible. My pain level varies but I'm always in pain. Every time we try a new medication I sleep for the first couple weeks, and am always exhausted (since the brain is a nerve!) as a side effect. I've done 4 years of school toward my BFA Jewellery and Metals (but taking 3 courses rather than 5 per semester to take it easy on myself) and had to withdraw this year because last year I barely made it to any classes and it was a horrible waste of time. My neuropathy is in my arms/hands and legs/feet and I've also developed lower back deep muscle pulls from the way I work at my bench.

It sucks. My teachers were all great about it, but I can't help feeling like I've wasted my time and their time. I can't go to school, I can't work - I feel like such a failure, all the time right now, like a useless waste of air. It's been really hard for me to come to terms with the idea that MY Normal is not everyone else's Normal anymore, and I really struggle against the idea that I can't do what my friends can, that I don't have the energy or immune system (STILL) and that I hurt so often and am so tired all the time from the meds I don't want to be taking and their horrible side effects.

I'm lucky that I haven't dealt with a LOT of other people frowning down on me saying that I must be making it up, but I have so much frustration and upset coming from myself about this. I'm turning 29, I can't go to school, I can't work a normal job, I can barely get out of bed most days lately, I have a completely lacking social life because I hurt too much to go out most of the time, I'm single, I live with my parents (which I'm lucky enough to be able to do, since I can't work like this! but still!).... It's just so frustrating you know? Like hi.. where's my normal life?